The case summarized Jenny (41) began to experience symptoms such as migraine, pain, fatigue and irregular menstruation when she was 34 years old, but did not feel taken seriously by the health care system. Jenny did not give up, and after four years was diagnosed with POI, premature ovarian insufficiency. The poi diagnosis came so late that it was not possible to retrieve eggs for freezing. Thus, Jenny cannot have biological children. The University of Bergen has started a new initiative to research four under -studied women’s health themes, including POI. Many with Poi never get an answer as to why they got it, and many have not heard of the disorder until they are diagnosed. Jenny hopes that by sharing his story can contribute to more transparency around the diagnosis and help other women in the same situation get help earlier. The summary is made by a Ki service from Openai. The content is quality assured by news’s journalists before publishing. – It felt like my body failed me, for no obvious reason, says Jenny (41), who is located in a municipality in Inland. The symptoms began when she was 34 years old. Migraines, pain and fatigue. Menstruation became irregular, but never disappeared completely. She went to the health care system, but experienced being sent from a specialist to a specialist. – I felt that my concerns were not taken seriously, she says. Frames three percent of women after months of uncertainty, Jenny himself began to read up on hormonal disorders, and sought out foreign research and articles. She eventually suspected that she had “POI,” a disorder affecting three percent of women under 40. POI has several similarities to menopause, but in those with POI the processes happen very much earlier. Self -Studies: Jenny has read up thoroughly to find out what was wrong. Photo: Ann-Kristin Mo / news-expired a private health clinic confirmed the suspicion and diagnosed almost two years ago. For Jenny, it was good to finally know that she had not reached menopause. – I was happy, because when you get the stamp “Menopause”, it’s like getting the stamp that now you have gone out of date, she says. At the same time, the poi diagnosis came so late that her ovarian reserves were too small for eggs to be fed for freezing. There and then the idea of children was far away for Jenny. But being told that it was not possible to have children was still a hard blow. – Being told that fertility was gone was perhaps worse than feeling that one is not taken seriously by the health care system. When you are young, no one expects you to have that type of problem. Large knowledge gaps – It has been a tradition that a lot of research has been done on men, says Eystein Sverre Husebye, professor at the University of Bergen. This means that they have lacked important knowledge about the treatment of women, says Husebye. Facilitated treatment: Research on women is needed to provide right and organized treatment, says researcher Eystein Sverre Husebye. Photo: Ida Harr Overland / news The University of Bergen has started a new initiative, where four under -studied women’s health themes will be researched. POI has been selected as one of these four, says Husebye, who will lead the research project. – The goal is to say something about what triggers POI. Then you might be able to do something about it, he says. The research project will start in June and go over four years. – I’m looking forward to it. I think we can achieve a lot, he says. Unknown to most majority of women with POI never get an answer as to why they got it. So it is for Jenny too. Many have not heard of POI either. It makes it difficult to be open with friends and family about the challenges she faces. – I get really sorry. I feel it has been very difficult to try to explain. I don’t think they understand what it means, she says. At the same time, she understands that not everyone is able to get as much into what she has done. – You should be a little nerd to want to get into all the mechanisms that lead to this here, and how things are going on in the ovaries and in the brain. I have become my own specialist. Want openness Jenny’s journey from symptoms to diagnosis and treatment has been long and tough. She is still aware that it has made her stronger. – I have had to learn to be my own advocate in the face of a health care system that often does not know enough about POI, she says. Specialist: Jenny has read medical studies, talked to experts and feels she gradually become her own specialist. Photo: Ann-Kristin Mo / news By sharing her story, she hopes to help get more openness around the diagnosis, and to make it easier for other women in the same situation to get help earlier. – No one knows your body better than yourself. If something feels wrong, then it’s worth fighting to be heard. Published 14.03.2025, at. 20.19
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