Tag: Spinraza
Serenne is the only adult in Norway who receives Evrysdi instead of Spinraza for spinal muscular atrophy (SMA) – news Vestland
The case in summary: Serenne Vikebø (22), who has the rare muscle disease spinal muscular atrophy (SMA), has experienced significant improvement after gaining access to an expensive medicine. The medicine…
Decision forum says yes to Spinraza for muscular dystrophy in extra meeting – news Norway – Overview of news from different parts of the country
– We have decided that Spinraza can be used for the treatment of adult patients with spinal muscular atrophy from 15 May, with certain criteria, as we have had for…
Decision-making forum considered the medicine Spinraza for muscular dystrophy in an extra meeting – news Norway – Overview of news from different parts of the country
– We have decided that Spinraza can be used for the treatment of adult patients with spinal muscular atrophy from 15 May, with certain criteria, as we have had for…
60 SMA patients are waiting for Spinraza and Evrysdi. Price negotiations are still ongoing. – news Norway – Overview of news from different parts of the country
– I know that from a socio-economic point of view I should have had an abortion. Ola Schrøder Røyset tells how he feels that it is finances that determine whether…