This case is about Preliminary results from an ongoing study at the University of Bergen show that parents and siblings who lose a child feel that there is little help available. Almost two thirds of those who have lost a child or sibling felt that there was no or little help available. The study shows that the help is perceived as insufficient, random and dependent on the individual. Society needs to talk more about death, and death is in many ways a taboo. Losing a child is one of the most painful experiences a person can have, and grief can lead to physical and mental health problems. The aim of the study is to gain knowledge about what bereaved people really need when they meet the health service, in order to be able to provide more accurate help. The summary is made by an AI service from OpenAI. The content is quality assured by news’s journalists before publication. – I wake up from time to time and look for him everywhere. Iselin Shumba was allowed to have her son Storm for nine days, then he died in the crib. She is left with many questions. – That is to understand it. There is no reason. There is no answer. So, in a way, you just have to put up with it. Storm was buried at Vår Frelser’s cemetery in Oslo next to Ari Behn and other great artists. Photo: Marianne Ytre-Eide / news Last year, 280 children under the age of four died, including stillbirth and illness, according to figures from the medical birth register that LUB has extracted. The University of Bergen together with the National Association for Unventa barnedød (LUB) has started a research project to find out how survivors who lose children feel afterwards and what kind of help they feel they get. Postdoctoral fellow Natasja Elena Kersting Lie at the University of Bergen. Photo: UIB / UIB Many are completely alone. news has gained access to the first preliminary results from the NORHJELP study, which show that a large number of survivors are having a difficult time. Almost two-thirds of those who have lost a child or sibling felt that there was no or little help available. These are the results so far. To the question of whether they feel that they have received help, 75.1 per cent of them answer that they did not or to a small extent received sufficient support and help when they were at their worst. When asked if they have experienced a lack of capacity and waiting lists for help, 61.5 per cent respond that they have. This is according to postdoctoral fellow at the University of Bergen Natasja-Elena Kersting Lie, who leads the study. – Basically, they want the help to be outreach, but they may find that they have to make contact themselves, or that they do not know who they can contact. They point to the fact that the help is perceived as insufficient, random and dependent on the individual. She says that similar studies were carried out on this, which mapped the bereaved’s needs for professional help and assistance services in the municipalities 20 years ago. Found then, they presented the same challenges as today. That surprises Lie. – It is sensational in that the support system is better developed than it was then. There have been several reforms, such as the establishment of municipal psychologists, recommendations for better crisis preparedness and an upcoming diagnosis for long-term grief. At the same time, there are just as many who are dissatisfied. Then we have to find out why it is like this, we don’t know that yet. She does not rule out that it may be about a greater expectation of getting help. The Municipal Organization (KS) says they will not comment on the study until it is finally finished in February next year. Social network important Lie says the social network is important for parents and siblings. For Iselin Shumba, her friend Elisabeth Thorsen, who is also a priest, was a great support. Iselin Shumba and priest Elisabet Thorsen say it is important to talk about death and give it a face. Photo: Marianne Ytre-Eide / news It was Elisabeth who buried Storm. – There is always a kind of seriousness at the bottom when we talk. I am very little afraid to talk to her about the deep seriousness, because I know that she has a kind of “Olympic gold” in handling people in crisis and people in difficulties. Priest and author Elisabeth Thorsen says it is important that Iselin is open and gives death a face. – I think it is difficult to understand how important it is to have someone and to identify with. Someone who can put a face on grief. And life a face. You have experienced something that many people experience. And that is also part of life, then. But if we don’t see anyone wearing it, we think we’re the only ones. The friends think we need to talk more about death We need to talk more about death She also thinks society needs to talk more about death than we do today, and that death is in many ways taboo. – Yes, I feel that there can be both such a resistance to doing it, but also that people actually need it, and perhaps also long for it. Lie says that losing a child is one of the most painful experiences a person can have. – Grief can be both intense and long-lasting, and can lead to physical and mental health problems. And we know that the families need help. She says the aim of the NORHJELP study is to gain knowledge about what survivors really need when they meet the health services. – Then we hope that this knowledge can contribute to the municipalities being able to adapt the aid. She hopes that in future they can provide more accurate help, so that they can better prevent and detect the serious health problems grief can cause. Friends Iselin Shumba and Elisabeth Thorsen say openness is important. Photo: Marianne Ytre-Eide / news Iselin Shumba says that having a child and then losing it opens up a new space in her. – I thought I knew something about love. I knew nothing. No. No. I didn’t do that. Published 13.11.2024, at 06.15 Updated 13.11.2024, at 06.59
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Poor follow-up of parents who have lost a child – news Norway – Overview of news from different parts of the country
