Saka Samantfatta: A new study among IBS patients shows that they have greatly reduced quality of life and low confidence in GPs and specialists. Only 21 percent of patients feel that the treatment offer from the public health system has helped them. More than half of the patients feel that treatment they have tried on their own hand has had an effect. The gastrointestinal association calls the situation catastrophic and says that IBS patients are a neglected group. There are no effective medicine against IBS, but more patients are improved by changes in the diet. The summary is created by a Ki-service from Openai. The content is quality assured by news’s journalists before publishing. Around 10 per cent of all in Norway have the disease irritable bowel syndrome, IBS. There are no effective medicine. – In order to tolerate the abdominal pain, I had to keep up. I was like glued to the couch, and went between the bathroom, the dinner table and the couch. Then I looked very dark at life. Irene Dalland was pregnant when the symptoms of IBS exploded. Irritable bowel syndrome (IBS) Common symptoms of IBS are: abdominal pain Laus stools and/or constipation Mean of intestinal air and the feeling of being bloated many people experience pain after food intake and feel improvement after toilet visits can get worse by stress and some foods, but many experience lifestyle. And tests show that there is no serious illness. The condition does not destroy the intestine, but can have a negative effect on the quality of life. Source: Helsenorge. She has always had problems with her stomach, but now she was quite out of play at home in the garden she runs with her husband at Tysnes in Sunnhordland. – I couldn’t do anything. My husband could not travel to work in the North Sea. I was sick, and he was a sick leave because of me. It was absolutely wild. Irene was pregnant when she got so bad that she couldn’t do anything. When she was around four months, she found a diet that worked. The picture is from later in pregnancy, when she could work again in the garden. Photo: The private conclusion of the doctor after the recommended dietary plan had no effect was a new blow in the stomach: – I had to just have to learn to live with it. Then I was quite shocked, thinking in my quiet mind: Should I just have to live with my life being like that? A new survey shows that Irene is one of many. Only 21 percent of patients feel that the treatment offer from the public health system has helped them, according to the survey among almost 3,000 Norwegian IBS patients, which was recently published in the journal BMC Gastroenterology. Opposite, more than half feel that treatment they have tried on their own has had an effect. There was also the rescue to the Irene. The IBS study shows low confidence in doctors and reduced quality of life: 2727 patients with IBS have answered the question in the survey. There are more women than men who have the disease, and the driver’s compromise is greatest among adults under 40. 97 % say that IBS reduces the quality of life. Most report that it affects social life (90 %), sexual life (69 %) and work/study (94 %). 70 % say they feel nasty. 38 % of IBS patients are outside working life, which is more than ten times higher than the population in general. Around half of the patients had to discuss the stomach problems with the GP more than ten times and wait more than one year to be diagnosed. 54 % does not feel that the GP took their problems seriously, and 46 % are not naked with the help they received from the GP. 23 % do not feel that specialists took their problems seriously, and 34 % are not naked with the help they have received from a specialist. Only 21 % feel that the treatment they have received has helped them. Opposite, more than half (54 %) feel that the treatment offer they have tried on Eigahand has had an effect. Only 18 % thinks GP Deira has sufficient expertise on IBS. 43 % thinks their specialist has sufficient expertise on IBS. Source: The study was done by the gastrointestinal association, in collaboration with Professor Emeritus Magdy El-Salhy and Professor Jan Gunnar Hatlebakk at the National Quality and Competence Network for Functional Gastrointestinal Diseases (NKFM) in Helse Bergen. -IBS patients are a neglected group-it is a catastrophic situation and a crushing judgment on how the health care system meets IBS patients. This is what Mads Johansson, who is Secretary General of the Gastrointestinal Association. He calls IBS a people’s disease, and thinks the lack of help causes huge losses for both society and individuals in the form of money, quality of life and resources. Secretary General Mads Joahansson of the gastrointestinal federation calls for an increase in focus on IBS. Photo: Ragnhild Elnæs/Kolonihaven.no – I think most Norwegians think that I have the world’s best health care system. But this shows that I am not in goal, and patients with irritable bowel are a neglected group. In general, Norwegians are naked with the help they get. Recently, this year’s health policy barometer from Kantar was published. There, 81 per cent say that they have good or very good experiences from the contact they had with the health test over the past year. This is an increase from 2024, when 78 per cent answered the same. Got help at Haukeland in Bergen Camilla Kolden Grue (49) has had the IBS diagnosis for seven years. At worst, she has lived just between the toilet and the bedroom. She uses words like “miserable” and “nothing” when she is going to compose the help she has received from doctors on the road. – Had I not taken a step myself, I do not know how my life would be today. It does not seem like the health care system is threatening to us IBS patients, because I am not “sick” enough. On her own initiative, she has been assisted by dietary management and courses under the auspices of the National Quality and Competence Network for Functional Gastrointestinal Diseases in Helse Bergen. Today, she lives much better with the disease. – In Bergen I met a doctor who gave me a little more faith in life. Even if there is no cure, I would like the general practitioners to become more courses in how they receive patients who have IBS. That they take us a little more seriously. Camilla Kolden Grue has been struggling with his stomach for several years because of IBS. Photo: Private was called “Masekjerrerar” Professor Emeritus in Gastroenterology, Magdy El-Salhy, is one of those behind the study. news has previously written several cases on his research on Fekal Transplantation, which has produced promising results and which is still under testing. El-Salhy generally believes that the health care system today spends too much time and resources on what he calls unnecessary surveys of IBS patients. And that doctors generally know too little about the disease. Professor Emeritus Magdy El-Salhy Meiner patients are exposed to unnecessary studies and that they are not taken seriously in the face of the health care system. Photo: Eli Bjelland / news – Why do you think the disease is not prioritized more? – It’s a woman’s disease. When I was a young substitute physician in Sweden, my older colleagues call these patients “Masekjerringar”. They examined them, but did not find any mistakes. – This disease makes doctors feel helpless, because they do not know what to do. Therefore, it is so important that there is more space in the medical study. Directorate of Health: – Understands there are despairing educational institutions news has been in contact with, says medical students are taught in IBS. Among other things, NTNU replies that the students have a double hour about IBS for the 3rd year, and that the students are well enough to meet and provide treatment to IBS patients. Hilde Myhren is the Division Director of the Directorate of Health. Photo: Dragana Njegic / Directorate of Health The Directorate of Health believes it is positive that studies on experiences and experiences with the health test are conducted. – The Directorate of Health recognizes that symptoms associated with IBS can be very plagued and reduced quality of life. If one also experiences not being met in a good way in the health test, then there is something I have a great understanding that is despairing, says Division Director Hilde Myhren. Food became medicine there is no miracle cure against IBS, but changes in the diet can help. Many patients have a good effect on the so-called low FODMAP diet, which is about avoiding a variety of foods. For Irene Dalland, this diet had no effect. She first came out of the pain after she begins to experiment herself and bought a diet plan from a nutritional adviser. Irene Dalland made lunch as her stomach tolerates. On the menu are among other homemade seeds with dairy butter, white cheese, eggs, clean beef, salad, walnuts and chia seeds. Photo: Eli Bjelland / news – I cut out everything that had to do with grain. Bread, pasta, absolutely everything. I make only crispbreads on seeds. And then I cut out all the sugar. It also applies to everything that turns into sugar in the body. – It was only two days from I lay on the couch with large abdominal pain, to the fact that I was on the ice with the kids with completely moderate pain. I felt like I had life in the gift again. Today she is fully active in the operation of the garden at Dalland at Tysnes. – It is shocking that there are so many who are disappointed or despaired that they have not received help in the health care system. Then it must sit more like me out there, who know the same thing I did when I was at the sickest. Irene Dalland Sver, for the diet, which made her get out of the couch about four years ago. She can go out once in a while, but then notes that her stomach becomes worse. Photo: Eli Bjelland / news Published 08.05.2025, at. 06.15
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